Tuesday, July 8, 2014

ScoliSmart Bootcamp


ScoliSmart Bootcamp. It’s what’s new in our lives this week. Yesterday was a rough day. John Michael and I left home at 6:07 AM and got to Dr. Morningstar’s office at 9:30. We got here and then had to wait 1½ hours to see the doctor after doing an x-ray. It was a crazy busy day in the office! Once we finally got in to see him, we didn’t get to hear good news. JM’s curvature progressed a lot since the last x-ray a few months earlier.

JM’s curve progressed to 82 degrees. Woah! I sure didn’t expect to hear that kind of number. Where do we go from here? Dr. Morningstar processed it with us and long story short, we are going ahead with the 2 weeks of bootcamp. At this point we are focusing on the correct functioning of his heart and lungs more than cosmetic appearance. At this point, his heart and lungs are not affected and we want to keep it that way.

Yesterday was an emotional day in many ways for me. Realizing that going through what is much like rehab/therapy brought back much of what we went through 10 years ago while going through rehab at Methodist Hospital in Indianapolis. It was a tough 8 weeks of rehab back then.

Although there are similarities here, it’s different in so many ways…
  • Our emotional trauma isn’t with us anymore. God has done an incredible amount of healing in our hearts and minds. Huge!
  • We’re not grieving intensely like we were almost 10 years ago. (Friday is the 10 year anniversary of the instant our lives were changed)
  • Our physical bodies aren’t  broken like they were back then. I’m walking painfree and John Michael is independent and confident in who he is.
  • I don’t feel like I need to be by JM’s side all the time. I don’t need to be his stability; emotionally, physically and mentally.

It feels very different this time. It’s healing for me.

What is God doing in all this? He’s doing some healing in me. I’m seeing the reality of how far JM and I have come since 10 years ago. It’s good.

I’ve been reading the book The Circle Maker by Mark Batterson this week. Excellent book. It’s so timely for me right now. I’m learning that it’s ok to be bold in my conversations with God. He doesn’t want me to be timid or unsure of my prayers. He wants me to be confident in what I’m asking of him.

For those of you who have read the book, you will understand what I’m saying. Others, take this as a challenge to read this amazing book. J

My circle prayer right now is that God will heal JM’s scoliosis. I believe with my whole heart that He can do this! I will continue to pray for this until he does this. How long will this take? Oh I don’t know … maybe days, weeks, months or even years. It will take however long God chooses it to take. I can continue to pray for healing but His answer is up to him. How He chooses to do this is also up to him. He may choose to start the healing process with this bootcamp and keep healing him through the daily exercises at home or some other way. I don’t always understand His ways… how, why or when. I just know that I will trust the God of the universe in this. I may look or sound like a fool to others... I’m ok with that.

We should praise God for disappointment because it drives us to our knees. Disappointment is like dream defibrillation. If we respond to it the right way, disappointment can actually restore our prayer rhythm and resurrect our dreams. 
 - Mark Batterson

I never felt like I was supposed to pray for healing of JM’s spinal cord. I don’t fully know why. What I do know is that I have always known that I need to pray for Jesus’ healing truth to penetrate his heart. God cares more for my son’s heart and mind much more than whether he can walk or not. I’m convinced that He wants to use him because of the spinal cord injury. I’ve seen it happen. I’ve heard it happen. God is using my son in ways that I will never know. I love how God is using his spinal cord injury!

Why do I feel the need to pray for healing of scoliosis? Not exactly sure. All I know is that I’m called to do this. It feels different for me to pray like this but I’m ok with it. I do know that when the curvature of the spine reaches a certain point it will limit the function of the heart and lungs. I don’t want this for JM and I don’t believe God does either. Can he stop it? Yes. Why hasn’t He stopped it so far? I don’t know. I do know that God did bring us here to see Dr. Morningstar and his team to begin the healing process.

Nothing honors God more than a big dream that is way beyond our ability to accomplish. Why? Because there is no way we can take credit for it. And nothing is better for our spiritual development than a big dream because it keeps us on our knees in raw dependence on God. Drawing prayer circles around our dreams isn't just a mechanism where we accomplish great things for God; it's a mechanism whereby God accomplishes great things in us.
- Mark Batterson

God is up to something. I’m All In for what he’s doing with my son, His child. He wants what’s best for JM, even more than I do.

I want to see more miracles happen … 

1 comment:

Wendy said...

I am weeping as I read. The journey isn't over yet but God has proven faithful and He will continue to guide the path! Love You!!